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Readers Respond: What About the Term End Stage COPD Bothers You Most?

Responses: 49


Updated May 01, 2014

From the article: End Stage COPD
"End stage COPD" is a term that leaves many people frightened that it might be time to "put their affairs in order." For some, this is a fair statement, but for those who take good care of themselves, nothing could be farther from the truth. What is it about the term "end stage" that bothers or offends you the most?

Doctor's Give Up

My dad is 91. What bothers me is when doctors give up and judge on age when there is still quality of life. My dad is a strong character and hasn't lost his marbles and isn't about to. GP says let nature take its course - how would they feel when it becomes their turn; will they give up?
—Guest Chris

Replace the Word "End"

I think "end" should be erased and they should replace that word. This whole COPD sucks. No matter what. My daddy has it. It's never the end that's giving up.

Reading post's

I just joined here tonight (6-5-13) and have read all of your post's and comments. I admire all of you and also feel for you. I myself, yes just just my belief is that is doesn't matter what stage your in or how long you are told that you might live. I have believed for most of my life to be "Right" with God and ready to die at any time. For me, I know that I have been getting worse over the years. After hospitalization in 2011. I was forced to accept that I could no longer be in law enforcement. My wife asked me before I let my employer know that I would not be able to return. She asked me a simple question (I was 53 yo ) She asked me if I thought that I could really protect people any longer. It was sad to say that I had to confront the truth that I couldn't any longer. I thank her so much for going with me to turn in my weapon and uniforms. I could and feel like pouring my heart out on here. Many of you are worse off than I am. I'm just glad to be able to share my feelings. Tk

Being Humane

It is funny they tell us to be humane to our animals but what about to the humans that wish to not suffer the terrible discomfort of just being here not living a full life and never will I think there ought to be a humane way to go to our final rest without drowning in our own fluids and beingscared to death I don't want to die scared and I dont want my family to see me that way either
—Guest Anna

End Stage of COPD

I have end stage of COPD and I am not on oxygen, I mow my own yard, take care of my home, walk daily and just keep going. I will admit that yes, it is harder and I do get short of breath, but I will not give up. So even if a doctor tells you "end" stage it is what you make of it. The best advice I can give is "never give up". Exercise is one of the most important things you can do for yourself. Even if you can only exercise for a minute or two, that minute or two will benefit you in the long run. Just because a doctor says "end", he is not God, God only knows when he will take you home. Keep positive and hopeful .. I am. :)
—Guest Becki

Whatever You Make It

I believe that end stage is what ever you make it. Love, laugh and know that you are loved. God is in control and has been since day one. He gave you breath and he will be the one to take it away.
—Guest sharon

The Word End or Stage IV Means Fight!

I was told I had very severe COPD Feb 2009. I have 29% use of my lungs and on 02 24/7 I am 58yrs young. I have 2 daughters and 3 grandsons and that's what helps keep me going and I all so have the desire to want to live. I try to stay positive most of the time. In the last 3 yrs I have been in the hospital twice, the last time was in June 2012 it took a lot out of me. I went to rehab and I feel stronger. I go to my grandsons basketball games o2 and all, Walmart, Ross. I also have been testing to see if I can have this surgery called a Lung Volume Reduction. my last test was a Cardiac Chat. and found out that I had blockage and had to have a Stent put in my heart. so the surgery has to be pushed by 6 wks. I stay as positive as I can for the most part remember when you are given lemons make lemonade. So FIGHT cause we all are going to die of something. IT'S ALL IN GODS HANDS

What the Term Means

Means that any further medical intervention will not benefit the patient. That the decease will be left to run its course until death. I've been at the bedsides of two people who have passed. While distressing, it was a privilege. These people were family.
—Guest Rick

End Stage - Debbie William

Oh Debbie I have no idea who you are but it broke my heart to hear you say your alone and your passing won't hurt anyone. It made me cry to hear you say that, it hurt me and I don't know you. I just wanted to let you know that I am praying for you and you do matter!
—Guest Sherry

Waiting Game

End stage means you have fought a good fight but the end is in sight. But don't give up, it's only the end if you let it be. Keep strong.
—Guest Iris Willoughby-Doyle

No One Tells You That It's End Stage

My mom passed from COPD and all the times I was at the hospital with her and talked to doctors, they never mentioned end stage COPD or even COPD at all. All I ever heard was Emphysema and pulmonary complications, blah blah blah. I wish someone had given me more information. Not that it would have made much of a difference, but I might have gotten 1 more year with her. That's a big difference for me.
—Guest TaraB

It's Only Terminology

It's just terminology. Ignore. Carry on with your treatment, take your medications, do some praying and hang in there.
—Guest el391@verizon.net

Doesn't Bother Me

The term end stage doesn't bother me because it gives me a time line to work with and a goal to beat.
—Guest Deborah Janes

What's In a Name?

It's of no matter what label they put on it, it is the end stage. Amen.
—Guest tony

The Term "End"

My mum just passed and her death certificate states "End Stage COPD" as the cause. We have known for many years she has COPD, but didn't really believe how horrible it would be to watch what happens, all those commercials on TV, now are such a reality, they actually are showing the truth, I didn't want to believe it was the end, I kept thinking I'd walk into her hospital room and see her up eating and smiling. She suffered at the end and I'm glad she is at peace now. Never, never smoke. It really will kill you...
—Guest Karen
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