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Readers Respond: What Led To Your Decision To Participate in a COPD Clinical Trial?

Responses: 11

By , About.com Guide

Updated January 22, 2010

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A COPD clinical trial may offer new hope to patients suffering from COPD -- hope that may have been lost upon diagnosis. Have you ever participated in a COPD clinical trial? If so, what led to your decision? Was it because treatment measures were no longer effective? Or perhaps, you wanted to help doctors better understand how to slow lung function decline that occurs from COPD. Whatever your reasons, if you have been involved in a COPD clinical trial, Share Your Experience

Someone Has To Prove It Works

I've had opportunities to participate in clinical trials and they were totally worth while and very much needed. Yes, side effects may come, but if someone else doesn't do it, they'll never know if it works! That's how I like to look at it.
—Guest John Davis

Tom Rawson

Percy told me about it, this way I could afford my Rx.
—Guest Percy Davis

Hoping to Find a New Medication

18 months ago I participated in a clinical trial for the Novartis medication that came on the market last year. I did it hoping to find a new medication that worked better and also because I wanted to contribute to the COPD community. The study was well monitored, I received my medications for free, and even better my breathing improved a lot so even though it was a blind study with half receiving a placebo, my doc and I felt sure I got the real thing.
—AppliqueQuilter

Ongoing Clinical Trial for COPD Patients

My name is Sam Welgemoed, I work for a company by the name of Richmond Pharmacology, a clinical research organisation based in London. Richmond Pharmacology conducts medical research to help develop new medicines. Our 2 research units, based in London at St George’s University Hospital and Croydon University Hospital, provide you with the safest and most comfortable facilities. Richmond Pharmacology works closely with Hospital Consultants, Research Physicians, and Clinicians ensuring the research we conduct is meaningful, ethical, and safe. Richmond Pharmacology is currently conducting a clinical trial of a new treatment for chronic inflammatory diseases such as asthma, Chronic Obstructive Pulmonary Disease (COPD), Rheumatoid Arthritis (RA) and psoriasis. If you are interested in taking part call 0208 664 5200 and select option 1 or email volunteer@richmondpharmacology.com to request further information
—Guest Richmond Pharmacology

Interested in Clinical Trials

I HAVE HAD COPD FOR ALMOST 10 YEARS. I QUIT SMOKING I AM INTERESTED IN THESE TRIALS, AND TRYING NEW MEDICATIONS.
—Guest CATHY CLINE

Didn't Qualify

I was to enter a clinical trial that was going to make small holes in each lung (diameter of a pencil lead) but didn't qualify as I had to much carbon dioxide in my blood. I will wait for the next one, as Sarasota Memorial is a great hospital.
—Guest Robert Beckner

No, But Asked About It ...

I inquired about trials but needed clearance from my pulmonologist, cardiologist and primary doctors. They all did not recommend participation "based on your condition, there's far too little room for error". I am grateful to those who do participate as we know how much benefit it offers all of us.
—Husker88Fan

COPD Gene Study & Macrolide Study

I have participated in the COPD Gene Study and the Macrolide Study. It was no imposition and hopefully someone will derive some benefit from them. I am presently in the Tracheomalacia and COPD study at the Beth Israel Deaconess Hospital in Boston. Through it, I have found out that I suffer from Tracheobronchomalacia. I just had a bronchoscopy and will discuss the results with the doctor in 2 weeks.
—Guest smplay

No

I have never been in a COPD trial. Just curious about the article.
—110731

Research Participation

I felt my condition wasn't being addressed as I was comfortable with by my primary care doctor. I had asked to be given reference to a pulmonologist to get more information and treatment and my primary doctor asked why, as he listened to my chest as he didn't seem to think I needed one. I wasn't satisfied with that. I had asked him to give me a spirometry test since the last one had been in 2006. Never got that either. Being on 3 inhalers seemed to be doing little as time grew on so I came across a study on the internet asking for participants. I felt this could be a way to get more and better treatment. The study is being done by a university here in the Seattle area as well as in California. As I am just entering into the study so far the results have shown I needed to be on oxygen during any kind of exercise. It is a Shortness of Breath Self-Management study to help researchers better provide education and support to us. I am going back on Monday to continue.
—MICHAEL60B

No

I have not participated in a COPD Clinical Trial. Your article was very informative. I like the fact that the focus is on trying to find new drugs that help. You should never give up hope. johnnymc5
—johnnymc5

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What Led To Your Decision To Participate in a COPD Clinical Trial?

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